In late 2007, I wrote an article that was posted here on MyLeftNutmeg describing the battle royale that was being waged in the medical community over the diagnosis and treatment of Lyme disease. That article, Attack of the Chronic Lyme Denialists, illustrated how greed and conflicts of interest among a small group of researchers is corrupting the science and medical guidelines which affect the standard of care used by doctors across the country.
That article was followed up by another piece which detailed the fallout from this battle, the prosecution of Dr. Charles Jones, a New Haven area pediatric Lyme specialist with such a sterling record of success in the treatment of pediatric chronic Lyme disease that patients have come to him by the thousands from literally all over the world. Unfortunately, the small cabal of researchers who control the standard of care for Lyme disease, along with the Infectious Diseases Society of America, which publishes their Lyme disease diagnostic and treatment guidelines, the insurance industry, and the CT Department of Public Health, have chosen to enforce a very narrow and scientifically unsupported definition of Lyme disease, one that completely dismisses the possibility that persisting Lyme disease symptoms after standard treatment regimens could be caused by persisting infection.
They enforce these standards despite peer reviewed science proving that the infection can persist and despite the fact that there is no diagnostic test in existence that can either prove or disprove whether a patient's ongoing symptoms are caused by persisting infection. Dr. Jones is among those who have chosen to treat chronic Lyme disease with longer than IDSA recommended courses of antibiotics, and as has happened to chronic Lyme doctors across the country, he was targeted by the state medical board as a result. You can read more about the bogus case against Dr. Jones here: CT Pediatrician to be Sanctioned for Lyme Disease Treatment.
In 2009, sympathetic legislators, some of whom have experienced the ravages of chronic Lyme disease in their own families, drafted a bill which would ensure that doctors in this state would be free to treat Lyme disease using longer courses of antibiotics without fear of retribution by the state medical board. That bill recently passed the CT House with a unanimous 137-0 vote. It was headed for a vote in the Senate this week, but one unnamed Senator has apparently objected to the bill being included on the consent calendar which would guarantee its coming up for a vote, no doubt hoping to run out the clock on it. The bill can still be brought up for a vote, but it must first be brought up for discussion. We need your help in lobbying the Senate to bring this bill to the floor and vote favorably on it before the legislative session ends.
Following (below the fold) is the Action Alert related to this matter. More information on this bill and related video of testimony and debate can be found here: http://www.lymerights.org/html/ct_lyme_bill_6200.html
Elizabeth Ellis, of Arlington, Mass., attends Jone's licensure hearing with her three children, Andrew, 9, Louisa, 7, and Olivia, 5, all of whom Jones has treated for Lyme disease. The woman in black is Susan Marra, Jones' naturopath. (Shana Sureck, Hartford Courant)
In my recent commentary, "Attack of the Chronic Lyme Denialists", I explained how there is a battle raging over the diagnosis and treatment of Lyme disease, particularly with regard to whether Lyme related symptoms that do not resolve after 30 days of antibiotics (the currently accepted "standard of care") are the result of ongoing infection or some other undefined
condition. I also described how a small but powerful cabal of academic researchers whose beliefs lie on the short term treatment side of the debate have chosen to settle the issue not through rigorous science, but rather through brute political force.
Perhaps the most insidious way such force has been employed is through the use of state medical boards to drive uncooperative clinical doctors out of practice. Successfully removing just one chronic Lyme doctor instantly
puts an end to the insurance claims of hundreds if not thousands of patients, and puts and end to the need for assistance from countless local hospitals wishing nothing to do with treatment methods which they consider unnecessary and dangerous.
Such is the case with Dr. Charles Ray Jones, who has successfully treated thousands of children suffering from chronic Lyme disease. Jones has spent the last year of his life not only seeing patients 6 to 7 days a week, but also regularly commuting from his New Haven area medical practice to Hartford for disciplinary
hearings resulting from a complaint filed by a divorced father seeking to gain custody of his children and avoid responsibility for medical expenses that the mother could not afford.
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