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My Left Nutmeg

Hundreds Protest IDSA Lyme Disease Treatment Guidelines

by: CTPatriot

Sat Dec 02, 2006 at 02:51:37 AM EST


New Page 1

Photo Courtesy of Journal News
 

VALHALLA - Hundreds of people rallied yesterday outside Westchester Medical Center to decry new treatment guidelines for Lyme disease that discourage the use of long-term antibiotics to treat lingering symptoms.

The voluntary guidelines were issued last month by the Infectious Diseases Society of America; the lead author was Dr. Gary Wormser, chief of the division of infectious diseases at the hospital.

Protesters from as far away as California and Texas waved a sea of neon-green signs at passing cars at the intersection of Woods and Grasslands roads, some of which personally mocked the doctor with messages like, "Wormser lies ... Patients Die" and "Dr. Wormser - You Make Me Sick!" Others read, "Gross Medical Neglect," and "Stop the Ignorance."

Photo Courtesy of Journal News
CTPatriot :: Hundreds Protest IDSA Lyme Disease Treatment Guidelines
While the Journal News article provided the typical mainstream reporting technique that favors balance over truth, the editorial board at the Baltimore Sun, of all papers, absolutely nailed it:
Lyme disease sufferers experience headaches, fatigue, chills, fever and, in advanced cases, heart and nervous system problems. The last thing they needed was to have their pains burdened additionally by a segment of the medical community that by recommending against long-term antibiotic use essentially threatens to reduce the quality of care they receive.
 
...
The most contentious piece of the new IDSA guidelines is a claim that long-term use of antibiotics is not a remedy and that they should not be prescribed beyond initial preventive doses. Lyme patients and their doctors are understandably shocked by this assertion. Their own experiences tell them differently. And though adherence to the guidelines is voluntary, the implications are that insurance companies and HMOs will refuse to pay for further antibiotic treatment and that doctors, even against their better judgment, will stop prescribing for fear of being brought up before medical boards.
The small but powerful cabal, of which Gary Wormser is a part, has spent years trying to diminish the authority of those who hold divergent points of view. In much the same manner as the radical right took over the US government, this cabal has achieved their dominance through cronyism, bullying, intimidation, subterfuge and monopolistic activities. Their goal is not to win in the marketplace of science and ideas, it is to force their particular ideology on our society while at the same time grinding those with opposing science and ideas into dust.
 
This has not been achived in a vacuum. The insurance industry and their benefactors within the US government have played a huge role in tilting the playing field.
 
In other words, the same kind of corruption and cronyism which enabled companies like Enron and Halliburton to rob the US treasury is also enabling the insurance industry and their greedy friends in the hallowed halls of academia to steal away our health.
 
Lyme disease is not just a potentially chronic and life threatening illness, it is also a political illness. What prevents it from having the kind of visibility that other political illnesses, like AIDS, have had, is that most people who have Lyme disease don't die from it, most will recover from it, and those who don't recover will usually suffer their pain and anguish in ways that are not easily recognized by others.
 

 
Additional Protest Information:
Resources:
Foundations:

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State Rep William Tong is not amused (0.00 / 0)
Thanks for the excellent writeup!

I wrote to newly elected State Representative William Tong (D-Stamford) about the Lyme issue, sending the info amassed here on MLN as Exhibit A.

Since Lyme is an equal opportunity disease, not knowing who it's striking, we probably have legislators who have suffered it and you never know which side of the aisle they'll be on.

I heared back from my email yesterday, and it turns out that William Tong has had Lyme disease, and he is NOT amused by Wormser's message.  I think we can expect an ally in the legislature on this issue.

Has anyone else taken the time to call or write?


there's also a semi active LiveJournal community (0.00 / 0)
(okay before every rolls their eyes and says EL JAY? EMO, its an interesting community). One member was at the rally, she said there were about 350 people there from far and wide. There's one particularly poignant photo, a list of people who have succumbed to Lyme... see here

.Adding Another Dimension of Vituperation Toxicity to Blogging since 1999!.

followup on balto sun editorial - copy of MD's lyme legislation (0.00 / 0)
The Baltimore Sun article states that Lyme disease sufferers in MD are the 7th largest population in the country.  It says that Maryland had a great law that anticipated much of the BS of this Wormser guidelines stuff, but that by the time the insurance companies and special interests got done "doctoring" the bill, even the proponents thought it should just die.

For CT legislators who might want to take a look at the Maryland legislation, see the link in this Canadian Lyme website:

http://www.canlyme.c...


 
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